Cincinnati Children's

Description:

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

I'm interested

Sex: ALL

Age:

Healthy Volunteers:

This study is NOT accepting healthy volunteers

Inclusion Criteria:

Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).

Exclusion Criteria:

Interventions:

PROCEDURE: Phlebotomy, PROCEDURE: Buccal (cheek) swab, GENETIC: Genetic Testing, OTHER: Tissue donation after routine clinical procedure

Conditions:

Tuberous Sclerosis, Lymphangioleiomyomatosis

Contact(s): Salma Ihiri - salma.ihiri@cchmc.org

Principal Investigator:

Principal Investigator ID:

Phase:

IRB Number:

System ID: NCT05676099

See this study on ClinicalTrials.gov

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TSC Biosample Repository and Natural History Database

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