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National Collaborative to Improve Care of Children With Complex Congenital Heart Disease

RECRUITING

The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.

I'm interested

ALL
Up to 15 month(s) old
This study is NOT accepting healthy volunteers

Inclusion Criteria:

  • Fetuses or newborns diagnosed with HLHS or other univentricular condition
  • Intended to undergo Norwood procedure

Exclusion Criteria:

  • None

OTHER: Collaborative Learning Network

Hypoplastic Left Heart Syndrome (HLHS)

Mark Timbers - mark.timbers@cchmc.org
NCT02852031
See this study on ClinicalTrials.gov

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